Blog Profile / Big Blueberry Eyes

Filed Under:Health / Diseases & Conditions
Posts on Regator:826
Posts / Week:2
Archived Since:February 15, 2010

Blog Post Archive

Christmas in Helen, GA

We spent Christmas (I know, it was 2 months ago already) in Helen, Ga. It's a quaint little Bavarian-themed town in the mountains. We were hoping for snow, but that didn't happen (at least not until later).We had a fun week away exploring a new-to-us area. Show More Summary

Love You Forever

During my grandmother's funeral Mass one of my uncles read the children's book "Love You Forever" by Robert Munsch.I don't think there was a dry eye in church as he read through the familiar images of a mother rocking her baby and singing"I'll...Show More Summary

Honor Roll!

Kayla made the Honor Roll!Academics do not come easily for her, at all, so this was definitely hard-earned. I was not able to be at the ceremony but I heard she was just beaming and so proud when her name was called.Requirement is 86 and above and she had a couple 85/84 last year so she was soooo close! So proud of her during this first quarter marking period!

Chess Accomplishments

As I mentioned in this post, Lucas is really enjoying the game of chess and becoming quite a decent player (if I do say so myself!).A few weeks ago the library chess club had a small tournament among their members and he came in third.A...Show More Summary

Halloween 2017

This year they went as Maleficent and a Peeled Banana:

Human Trisome Project

The Human Trisome Project is a ground-breaking research initiative into Down syndrome and researching the medical complexities that can accompany having an extra 21st chromosome.I first heard about the vision for this project at a Global...Show More Summary

If I Could Go Back

Remember the online documentary about 5 roommates (4 with Down syndrome and 1 with Williams syndrome) in England called The Specials? Their website was recently relaunched where Seasons 1 and 2 are available to watch and they have aShow More Summary

Missing Out On Beautiful

Missing Out On Beautiful is a collection of seven short essays about raising a child with Down syndrome written by Amy Julia Becker (author, including the book The Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny).Amy Julia is offering this collection of essays for free. Show More Summary

Deja Vu at the Iron Mountain Iron Mine

Last month when we went to Wisconsin I thought it would be neat if I could take the kids to Iron Mountain Iron Mine. I went there when I was 13 and my brother was almost 11. I thought it would be fun to take Kayla and Lucas to a place I had been when my brother and I were around their ages. Show More Summary

Sweet Caroline and the Red Sox

It goes without saying that I'm a Red Sox fan. Unfortunately for me, the local minor league team here in Charleston (the RiverDogs) are a Yankee affiliate. We have gone to several games though and the kids enjoy it. A few of those games the RiverDogs have played the Greenville Drive. Show More Summary

Medical Research in Down Syndrome

Down syndrome continues to be the most common genetic disorder and the least funded. There is so much to learn about the connections to the 21st chromosome and research is so important.It's important not just to the individuals with Down syndrome and their families - but it is important in the general population as well. Show More Summary

I Love the 80s

We were fortunate to spend another fun family weekend at Camp Victory Junction last weekend.The theme was "I love the 80s!" How fun for me since I grew up in the 80s :) We were originally on a wait list to attend. A week before campShow More Summary

Parenting and Perceptions (Repost)

I originally posted this nine years ago. I occasionally still feel this way; so this is a good reminder to myself.~~~~~~~~~~~~~~~~~~As a new mom one thing I struggled with (and sometimes still do) is Kayla's behavior in public and the...Show More Summary

Guardianship Thoughts

Last week I watched a webinar about the Beyond Academicss Program at the University of NC Greensboro.Last year I blogged about how impressed I was with their program after talking to them at the NDSC Convention and this webinar justShow More Summary

Intelligent Lives - A Documentary

Intelligent Lives is a new documentary film by the award-winning producer/director Dan Habib set to be released in 2018. The film follows the lives of 3 individuals with disabilities whose lives would have much different outcomes if they had been born even as recently as 1970 - most likely by being institutionalized. Show More Summary

Visiting Family in Wisconsin

Last month we went to Wisconsin for my grandmother's funeral. Initially I didn't think we would be able to make it because of the stress with dealing with the impeding Hurricane Irma. Thankfully that didn't impact out area too much. The first of our 3 flights to get there. Show More Summary

Sam's Top Secret Journal

A Middle Grade mystery book in which the main character has Down syndrome?Yes, please!That's exactly what you'll find in Sam's Top Secret Journal - a 3-book series. (We Spy, Sam's Secret Island and Memorial Day).Sam, who has Down syndrome,...Show More Summary

Woodbine House Books and DVDs

I think Woodbine House is the largest publisher of books and DVDs for disability issues. They have a large collection of products organized by disability ranging from children's books to books for parents and professionals and self-advocates.A...Show More Summary

Sometimes it's Not About Down Syndrome (Repost)

This post is another repost from a story I shared seven years ago.Last week Kayla and I went in to Boston's to pick up the gluten-free pizza I ordered for her.Kayla, being Kayla, was all over the place. Ok, not too bad this time actually, just up and down from the bench and being very talkative. Show More Summary

That Taboo Topic

Two years ago, during 31 for 21, I blogged about the importance of sex education for people with disabilities - and it's still important for this topic to be discussed.As I said in that post - sex education isn't just about sex (safe sex/abstinence) but it's also about healthy relationships and what is/isn't appropriate. Show More Summary

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