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A Week Without an MS Fall

It’s been a week today since my last fall! I guess I didn’t realize how often I’ve been falling of late, but it’s been an MS fall-free seven days. Caryn returned home from a business trip last evening, and I was able to report that relative success to her. It was a busy week as [...]

Caregiver? Care Partner? Who Really Cares?

Caretakers are in charge of the grounds of cemeteries, buildings, grounds, etc. They take care of something. Caregivers, on the other hand, give care and are referred to in British English as “carers.” If  caretakers take care and caregivers give care, do carers simply care? Now throw in the very American derivations of care partner or [...]

A Day Without (Thinking About) Multiple Sclerosis

Monday, I was supposed to write a blog and send it in. That obviously did not happen. We don’t own a car here in Kerry. We do rent a car now and again when needed, and this week is one of those times. So, I, piled the happy dogs into the hired transport, took Caryn [...]

The Sliding Scale of MS Symptoms

For a long time now, we’ve taken one post per month to ask the question; “How’s your MS today?” Last month seemed to be a bit mental for me and I simply forgot to ask. Using our LWM3S formula whereby 1=the best your symptoms have been since diagnosis and 10= the worst since diagnosis, how is [...]

Who Is Your MS Hero?

Some of you may remember the video I posted last year of Caryn and myself doing the adventure swim Jump for MS to raise awareness of multiple sclerosis. The hearty soul who led us on that trip is Ripley Davenport, and he too has MS. We all have our role models and personal heroes in the MS [...]

When Art and MS Come Together

With the sixth annual, and now internationa, MS Art Show taking place in Seattle in a couple of months, I have been thinking about art and multiple sclerosis. The old philosophical debate “What is art?” came to mind. Great musical performers like cellist Jacqueline du Pré, country star Clay Walker, and Australian singer Chrissy Amphlett, as well as painters [...]

My MS Is Not Your MS, or Is It?

The exact experience each of us has with multiple sclerosis is as different as anything I can imagine. At the same time, many of us have very similar experiences. How unusual, when you think about it, that we can experience every moment of the day differently with MS, but not a blog post goes by [...]

Guinness Cured My Multiple Sclerosis — Sort Of

Guinness cured my MS. Not really, but I did feel better than I had in years during the winter of 2005-2006. That’s the period I write about in Chef Interrupted when I was living in a small town on the Irish coast… and I drank a fair good bit of the black stuff. I had [...]

How to Live a Passionate Life With MS

I was honored to participate in a Google Hangout with Meredith Vieira last December. We talked during that event (which you can watch here) about managing life with MS and the support systems some of us find helpful. It was great fun and, I thought, an informative half hour. (You can watch that hangout here.) Now, I’ve [...]

Living in the Mindfield That Is MS

After a whirlwind two weeks in the Pacific Northwest to launch my new book, Chef Interrupted, I am back home with my pack and trying to adjust to the time zone and enjoying a slower pace. While in Seattle, I had the opportunity to spend some time with a film crew from the local NBC [...]

At Multiple Sclerosis Poker Night, All Bets Are Off

There have been a lot of bright, shiny moments in my life. For a good long time after my diagnosis with multiple sclerosis it seemed that those sparkles of life were no longer in my cards, but they did come back. Last night I experienced great warmth and pride when I visited Poker Night, the National [...]

Multiple Sclerosis and the Expectation Game

“Why don’t they understand?!” I hear many of us say over and over when it comes to family and friends and their expectations of us and our abilities. Some close to us expect that we can and will do all of the wonderful things we used to, with not a step lost because of MS. [...]

Your Life With MS: We Want to Hear Your Stories

As we’ve seen in many of your wonderful comments, we all have a story to tell about living with multiple sclerosis. We all walk through our lives with MS in unique ways, not unlike the disease itself. On that subject, I have a couple of announcements: Google Hangout With Meredith Vieira: Follow Your Life Passions [...]

MS Awareness Week: Test Your MS Smarts

To begin MS Awareness Week, I say it’s time to sharpen our pencils and break out the anti-anxiety meds: MS Quiz time. Last week, the National MS Society emailed a link to a 7-question MS quiz.  Though there are only seven questions, some of them are a bit tricky!  Might I suggest you take the quiz? [...]

Food and MS: Cause or Effect?

A new, rather small study has me wondering even more about the cause-and-effect aspects of multiple sclerosis research findings. Researchers at Johns Hopkins University in Baltimore tested a small number of women, 27 with MS and 30 without. They started out studying vitamin D in relation to MS. What they found was that not only did the [...]

‘MS Energy’: A Surprising Boost From a Traumatic Diagnosis

While I have heard and read of people who say “MS saved my life” or “MS made me a better person” or “MS gave me the chance to…” I think we all know I believe that any good that comes from a diagnosis with MS comes from within the people we already are. That said, [...]

Clearing the Deadwood to Make Way for New Grass

Yesterday was an absolutely stunning day here in west Kerry. Not that it was particularly warm, but the bright blue sky stretched all the way down to the mountains where winter hazel began to show a hint of spring green. When the sun came out from behind the fluffy, bleached clouds, the February chill cracked [...]

Multiple Sclerosis Icebergs: What’s Going on in 90 Percent That Lies Beneath?

At a meeting a few months ago, someone referred to multiple sclerosis as an “iceberg disease.” I jotted down a note to help me remember to write a blog about that idea. In shuffling through a file this week I ran across that note and I thought about it for a while. Many analogies of [...]

Time to Wash Your Cloudy ‘Windows’?

I’ve written in our pages before about the importance of a good window. On days when it is difficult to get out into the world, at least we can look upon it through a good window. But today I noted that my windows needed to be washed which, of course, got me thinking about the [...]

Dreams Can Come True, Even With MS

Hope without a plan is just a dream. I first coined that phrase when I was helping to introduce the Fast Forward initiative in 2007. What I was trying to get across was that the idea of hoping for something without working toward that goal was no better than simply dreaming about it. Ten years [...]

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