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MS Symptom Thesaurus: The MS Hug

It’s been a while since we opened the MS Symptom Thesaurus. This concept sprung from our 12 lessons blog in early 2013. In it, you have shared words and descriptions that have helped an uncountable number of people trying to explain their symptoms. Today, we open the pages to “The MS Hug.” Official MS sites [...]

Spring Forward or Fall Back: How’s Your MS Today?

Greetings from my local Internet café. We’re in the midst of another phone/Internet outage in my corner of Ireland. The remnants of hurricane Gonzalo or some other force may have had a hand, but it reminds me to ready for the winter to come. The upcoming change back to standard time has me thinking of the [...]

A Cup of Coffee and 10 Tips for a Successful Nap

Many people – MS and otherwise – find themselves in need of a rest during the day.  My energy usually wanes around 2 p.m.  Sometimes it’s just a dull ache of tiredness and others it’s lay-down-or-fall-down, mind-crushing MS fatigue. Sometimes these kips turn into full-on MS sleeps and I wake hours later in the same [...]

Silly Little MS Mistakes

“If I didn’t laugh, I’d cry… and I’ve cried enough over MS.” I say it quite often.  I often get a little titter at myself when I walk into the wrong room, walk into a wall, or simply turn and fall.  I’ve made a fool of myself in front of the bathroom mirror by using [...]

Comorbidity: Living With MS and…

It’s either the health equivalent of the domino theory or some deeper involvement of our whole immune system makeup, but people living with MS (or any other autoimmune condition) seem to be more likely to acquire a second condition than “healthy” people are to suffer from a first. Even in these pages, we have heard [...]

From the Life With MS Inbox: My Jump for MS

Every once in a while, something comes to my Life With MS inbox that sparks something inside of me and I have to share. We’ve had interesting products that can help people with MS come across our screen, a groundbreaking film about being diagnosed with MS, and books about MS and other disabilities. In August, a message came into our Life With [...]

MS Patients Report Improvements Due to Exercise

A study developed at the Miguel Hernández University of Elche (Spain) has preliminarily concluded that People with Multiple Sclerosis may reduce perceived fatigue and increase mobility through a series of combined strength training and fitness exercises. Show More Summary

Results with Potential Multiple Sclerosis Vaccine Seem Promising

Thanks to new insights related to dendritic cell vaccines, researchers are investigating a potential vaccine for MS treatment and prevention at the Baylor Institute for Immunology Research (BIIR), a division of Baylor Research Institute. If future research supports early findings, the study could mark an important first in that it attacks MS early while preserving […]

It’s Time We Have Access to High-Quality MS Care

In the past five months, I’ve traveled nearly 23,000 miles on buses, trains, taxis, rental cars, and airplanes traveling; spent scores of hours in meetings in person, on the phone, and via the Internet; and been privileged to work with an incredibly talented task force of individuals on the question of access to quality MS [...]

I Want to Feel ‘Regular Tired’ Again

We picked up our pack of Wheaten terriers from the boarding kennel the other day. They’d spent two nights there while Caryn and I took her parents up to the airport at the end of their stay. This boarder absolutely adores our dogs (okay, ALL dogs), so it’s almost a vacation for them. They play [...]

MS Is Becoming a ‘Young Person’s Disease’

In a recent conversation with my dear friend (and fellow MS activist) Emma Rogan, we were discussing some of the employment programs she is heading up for the European Multiple Sclerosis Platform (EMSP). As it often does with good friends, our chat zigged and zagged through a number of rapids, eddies, and deep pools. One [...]

It’s Almost Fall: How’s Your MS Today?

Next week, northern summer will officially become autumn, as winter becomes spring in the south.  I will tell you that I never imagined having a forum whereby we’d be able to chat with friends in both the northern and southern hemispheres on a regular basis. Seasonal changes can raise Cain with the symptoms of multiple [...]

Connection, Disconnection, Reconnection: How Do You Cope?

If you can read this, I’ve figured out how to “reconnect.” After a morning of visiting the shops (and visiting with shopkeepers); an afternoon of important phone calls to sort, arrange, and organize; and, an old fashioned evening connecting with new and old friends gathered in the cozy library of an historic home in our [...]

Ice Bucket Challenge, Part 2: It’s for ALS and MS

You may remember that a couple of weeks ago I took the ALS Ice Bucket Challenge.  It was good fun for a good cause and, as I stated in the blog about it, could help MS research as well. In my video, I challenged the president of MS Ireland, the founders of Shift.MS, and the [...]

Do You Know the People in Your Neighborhood (Who Have MS)?

It’s not much of a secret that I live with multiple sclerosis.  Most days I use a cane (if not a more advanced assistive device), it’s not a subject that Caryn and I avoid, and, let’s face it, I’m kind of out there on the subject. About a week ago I walked into a local [...]

Did Scientists Just Find the ‘MS Switch’?

Your e-mail box is about to fill, your social media is on fire, and by tonight, the evening news will be abuzz. Did they just cure MS? Just last week in my ice bucket challenge blog I noted that MS research may help other autoimmune diseases as ALS research may help other neurological conditions.  Well, [...]

What Would You Pack for a Trip to ‘MS Island’?

Well, I think it can be confirmed that I failed my packing test for this trip to New York! Walking off the plane I felt I’d not only traversed five time zones, but had also been transported from mid-autumn, past winter to spring, and then dropped into a swamp in mid-summer. The muddy, hot blanket [...]

The Ice Bucket Challenge

Well, it finally happened.  This week my wife, Caryn, squealed with delight as she watched our mutual friend’s video calling me out in the ALS Ice Bucket Challenge. I was standing in a warm shower on a cold and rainy morning thinking of my first cup of hot coffee and a fresh-from-the-dryer cozy towel when [...]

A New Season, a New Normal? How’s Your MS Today?

They say here in our little town at the edge of the world that “the summer is out of it after the [local horse] races.” Well, it was a great race weekend a fortnight back and I can attest that the summer is, indeed, out of it. Cooler, wetter days and some nearly cold nights, [...]

My ‘MS Crush’: An Organization Helping the First ‘Young Generation of MS’

Let me start out by saying that I’m beginning to have what my wife would call an “MS crush” on the lads over at Shift.MS. She has a “foodie crush” on a couple of local chefs who strum her palate. I guess it’s alright if I feel the same about an organization doing really good [...]

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