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Results with Potential Multiple Sclerosis Vaccine Seem Promising

Thanks to new insights related to dendritic cell vaccines, researchers are investigating a potential vaccine for MS treatment and prevention at the Baylor Institute for Immunology Research (BIIR), a division of Baylor Research Institute. If future research supports early findings, the study could mark an important first in that it attacks MS early while preserving […]

It’s Time We Have Access to High-Quality MS Care

In the past five months, I’ve traveled nearly 23,000 miles on buses, trains, taxis, rental cars, and airplanes traveling; spent scores of hours in meetings in person, on the phone, and via the Internet; and been privileged to work with an incredibly talented task force of individuals on the question of access to quality MS [...]

I Want to Feel ‘Regular Tired’ Again

We picked up our pack of Wheaten terriers from the boarding kennel the other day. They’d spent two nights there while Caryn and I took her parents up to the airport at the end of their stay. This boarder absolutely adores our dogs (okay, ALL dogs), so it’s almost a vacation for them. They play [...]

MS Is Becoming a ‘Young Person’s Disease’

In a recent conversation with my dear friend (and fellow MS activist) Emma Rogan, we were discussing some of the employment programs she is heading up for the European Multiple Sclerosis Platform (EMSP). As it often does with good friends, our chat zigged and zagged through a number of rapids, eddies, and deep pools. One [...]

It’s Almost Fall: How’s Your MS Today?

Next week, northern summer will officially become autumn, as winter becomes spring in the south.  I will tell you that I never imagined having a forum whereby we’d be able to chat with friends in both the northern and southern hemispheres on a regular basis. Seasonal changes can raise Cain with the symptoms of multiple [...]

Connection, Disconnection, Reconnection: How Do You Cope?

If you can read this, I’ve figured out how to “reconnect.” After a morning of visiting the shops (and visiting with shopkeepers); an afternoon of important phone calls to sort, arrange, and organize; and, an old fashioned evening connecting with new and old friends gathered in the cozy library of an historic home in our [...]

Ice Bucket Challenge, Part 2: It’s for ALS and MS

You may remember that a couple of weeks ago I took the ALS Ice Bucket Challenge.  It was good fun for a good cause and, as I stated in the blog about it, could help MS research as well. In my video, I challenged the president of MS Ireland, the founders of Shift.MS, and the [...]

Do You Know the People in Your Neighborhood (Who Have MS)?

It’s not much of a secret that I live with multiple sclerosis.  Most days I use a cane (if not a more advanced assistive device), it’s not a subject that Caryn and I avoid, and, let’s face it, I’m kind of out there on the subject. About a week ago I walked into a local [...]

Did Scientists Just Find the ‘MS Switch’?

Your e-mail box is about to fill, your social media is on fire, and by tonight, the evening news will be abuzz. Did they just cure MS? Just last week in my ice bucket challenge blog I noted that MS research may help other autoimmune diseases as ALS research may help other neurological conditions.  Well, [...]

What Would You Pack for a Trip to ‘MS Island’?

Well, I think it can be confirmed that I failed my packing test for this trip to New York! Walking off the plane I felt I’d not only traversed five time zones, but had also been transported from mid-autumn, past winter to spring, and then dropped into a swamp in mid-summer. The muddy, hot blanket [...]

The Ice Bucket Challenge

Well, it finally happened.  This week my wife, Caryn, squealed with delight as she watched our mutual friend’s video calling me out in the ALS Ice Bucket Challenge. I was standing in a warm shower on a cold and rainy morning thinking of my first cup of hot coffee and a fresh-from-the-dryer cozy towel when [...]

A New Season, a New Normal? How’s Your MS Today?

They say here in our little town at the edge of the world that “the summer is out of it after the [local horse] races.” Well, it was a great race weekend a fortnight back and I can attest that the summer is, indeed, out of it. Cooler, wetter days and some nearly cold nights, [...]

My ‘MS Crush’: An Organization Helping the First ‘Young Generation of MS’

Let me start out by saying that I’m beginning to have what my wife would call an “MS crush” on the lads over at Shift.MS. She has a “foodie crush” on a couple of local chefs who strum her palate. I guess it’s alright if I feel the same about an organization doing really good [...]

How Warfare Harms the Treatment of People With MS

It was with solemn reverence that many of us listened to the BBC broadcast from Westminster in remembrance of the centenary of the beginning of “the Great War.” We now know that said conflict was a bloody prequel to the mid-century conflagration that would rename it World War I. My own country entered into the [...]

A Middle-Aged Look at Life Without a Cure

There was a time in my life when birthdays were a good time to look back and mark accomplishments.  There was a time when they were a good time to look forward to what might lie ahead.  In general, I now look at birthdays as simply a good time to have a good time. When [...]

After the Fall: Getting Up From an MS Tumble

I believe there are two kinds of people: those who divide the world into two kinds of people and those who don’t. I always told culinary students, however, that there were two kinds of people in professional kitchens; those who have been cut and those who have yet to be cut.  Likewise it could be [...]

The ‘What If’ Game: Worries Waiting for MS Test Results

Today, there are nearly 60,000 recent high school graduates in Ireland (they call them “leavers” here) who are heading in to get the results of their “Leaving Cert” exams. This is the set of tests given to set young adults off on their academic and/or career paths. Big stress around a lot of homes and [...]

My Recipe for a Great MS Day

I think I was in an eighth-grade science course when we studied biorhythms (albeit briefly, though perhaps not briefly enough for a science class but, hey, it was the 1970s). I’ll not go into the plotting of the physical, emotional, spiritual, intellectual, aesthetic, and other cycles other than to say that one hopes to find [...]

I’ve Joined the Gym

Well, I did it. Though the facilities of my local health club are far (FAR) from what I’m used to accessing, it’s on the exact opposite side of town, and regardless of the fact that it’s damned expensive, I’ve joined-up for a year’s membership at my local gym (the only one for better than 45 [...]

I Don’t Want to Have MS Anymore

So, I’m sitting at my desk doing some research for today’s blog. I’m combing the latest news from clinical trials, the most recent news stories. I’m poking around all of the patient service and advocacy organizations’ sites. Then it hits me – I just don’t want to have MS anymore. Don’t get me wrong, I know that [...]

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