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Taking Advantage of the Good Days (or Good Moments) With MS

We haven’t had much of a summer in my little corner of the North Atlantic. Though many parts of America are scorching this year, and many areas of Europe are sweltering, I think we’ve only broken the 60 degrees F mark once… and I was on a train to Dublin that day. The past couple of weeks have [...]

Why the Americans With Disabilities Act Wouldn’t Pass Today

By now, most of us will have heard one news piece or another about the 25th anniversary of the Americans with Disabilities Act (ADA). Twenty-five years doesn’t seem that long ago, really. In fact, I remember writing a blog on the 20th anniversary of the bill’s signing into law. I guess we’ve been at this a [...]

What’s Popping Our of Your Multiple Sclerosis Clown Car?

Coulrophobia is the term for an abnormal or morbid fear of clowns. Though some of my dear friends have been clowns, I also know people who are completely creeped out by them. As the ringmaster of our individual three-ring circus of life, we all know what it’s like to try to keep the show running [...]

MS Dilemma: My Body’s Depressed, But I’m Not

Once a month for the past nine years, we’ve put out the question, “How’s your MS today?” Each time, we’ve taken advantage of this space to check in with ourselves, check out what others are experiencing, and check off our list of MS symptoms that are better, worse, or the same as the previous month. [...]

Ballroom Dance for Multiple Sclerosis? Why Not?

Shall we dance? Preliminary results of a recent study presented at the annual meeting of the Consortium of Multiple Sclerosis Centers in May indicate that “…ballroom dance can be a fun, social form of physical activity for people with MS that can result in improved motor performance, gait, endurance, and cognition.” Ballroom-style dancing has previously [...]

What a New Brain Discovery May Mean for MS

When headline news broke of the “brain-immune system missing link” in the form of a peer-reviewed letter in the journal Nature last month, the first stop for many with MS was to check to see if the promising stories were true. Not only were the reports of a newly-discovered lymphatic system connection in the brain true, they had [...]

Speed Bumps Along the Multiple Sclerosis Road

Living with multiple sclerosis and attempting to look ahead in life can sometimes feel like staring at an unfamiliar, winding road, mostly obscured by a foul mist of dragon’s breath. Often, therefore, we choose to look into the rearview mirror instead to try to gauge our life with MS thus far. At diagnosis, we try [...]

MS and Heat Sensitivity: I Thought I Knew What to Do

It’s always nice to come home after being away for a few weeks.  It was particularly pleasant to return home to an 85°F temperature change. On a recent leg of my book release tour, the hottest day while I was in South Carolina was 103°F  with humidity closer than a hoarder’s cupboard. By the end of nearly two [...]

Appointment Amnesia: Why You Forget Everything Your Doctor Says

In a continuation of the ongoing posts we call the MS Symptom Thesaurus, which we first stumbled upon tongue in cheek, I thought we’d address something that isn’t exclusive to multiple sclerosis. Generally, this “symptom” gets better as we progress from that diagnosing appointment. The problem is that as MS progresses, our cognitive function can [...]

How’s Your MS Today? I’m Beating the Heat in Florida

Time for that monthly check-in: How’s your MS today? Me, I landed in the Tampa Bay area of Florida this week, and WOW! I had forgotten what heat and humidity can do to a body. We’ve talked about what heat can do to people with MS before. I’ve also written about coping options to keep cool. Well, this [...]

Unsolicited MS Advice? Thanks, But No Thanks

As a consultant in the food world I always adhered to the adage, “Free advice is taken at face value.” That is to say that people respect and respond to an “opinion” much more when they’re paying top dollar (or Euro) for the advice. Those of us living with a chronic illness need to consider the source [...]

The Knowing Nod That Says ‘I’ve Been There Myself’

Yesterday I had the opportunity to speak with two groups of people about my former career as a chef, my book, and living with multiple sclerosis. In both chats there were people who knew MS very well and some who did not really know about our disease.  Some have MS, some were family members, and [...]

Is a Cane That Looks Cool Too Much to Ask?

In reading the program plan for this year’s Consortium of Multiple Sclerosis (CMSC) annual meeting, I was overwhelmed by the amount of really interesting research  Because it came on the heels of the European MS Platform (EMSP) meeting in Warsaw and just before I head to America and Canada in support of my book, Chef [...]

What Does MS Take From Us? About Seven Years

My name is Trevis Gleason and I live with multiple sclerosis. How many times haven’t I started a speech with that line?  Hell, it’s an important factor in my book, Chef Interrupted, I live with my disease. I consider myself a healthy person living with an incurable disease, and I try to get on with [...]

MS: A Difficult Disease Made Even More Difficult

For many of us, living with multiple sclerosis is a very personal endeavor.  Even those closest to us may not relate to just how trying some of the simplest daily tasks can be. That is one of the best parts of our Life with MS Blog community: We don’t have to explain. We all get [...]

Are You Stronger Than MS?

May 27 is World MS Day, and the hashtag #strongerthanMS will be used to raise awareness around the globe. The theme of this year’s celebration centers around access. Why access? Because each person with multiple sclerosis is affected differently but we all want to feel that we are allowed to do the things we choose and are [...]

Fingers and Feet, Don’t Fail Me Now

Two years ago this month we published the first entry in our MS Symptom Thesaurus. In the ensuing 24 months we’ve posted nearly as many entries on topics from pain to drop foot, and on to depression, “cog fog,” and so many more. The concept is for you to leave your synonyms, adjectives, adverbs, descriptions, [...]

Vision Quest: Have You Had Your Eyes Checked Lately?

Don’t love wearing glasses? I doubt that anyone does. That said, I do love my glasses. Beyond allowing me to see better, the frames I have are the only fashionable accessory statement I make. Silly as it may sound, it’s likely that it’s because I really like these spectacles that I haven’t gone in for [...]

Feel Bad? Maybe Things Are Better Than You Think

In January 2014, we changed the way we asked our monthly question: How’s your MS today?  That’s when we started using the Life With Multiple Sclerosis Self-Evaluation Scale (LWM3S). It’s a simple 1-10 scale. 1= The best I’ve felt my symptoms since diagnosis with MS 10= The worst I’ve felt my symptoms since diagnosis with [...]

Can’t Afford Your Prescriptions? Here’s How to Get Help

Earlier this week I wrote about the price of multiple sclerosis drugs in the United States. That piece was on the heels of a report published in Neurology that told of the out-of-control rise in the costs of disease-modifying therapies for MS. The blog was shared hundreds of times by our readers on social media [...]

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