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My Voice

Once upon a time, in a land far, far away there was a boy named Michael. The land was Europe. Frankfurt, Germany, to be exact. It was September 1980 and it was Michael’s first day of kindergarten. Michael, the youngest of three boys, was excited to finally join his older brothers at school. His mother, Frances, walked proudly with him to Frankfurt Elementary #1...

Recipes for Successful Entertaining With MS: Start With Eggs!

After I posted about my cooking demonstrations at MS Life 2016, I received a number of requests for the recipes I’d shared at that event. So I thought I’d share those with you today. These recipes are easy, fast to prepare, and suitable for entertaining. I know that the act of having someone over for […]

A Story about Shoes

This is a story about shoes. My favorite shoes. They were deeply impractical, very high heels. But they were full of good memories — parties and weddings and the feeling of being all dressed up with somewhere to go. The truth is, I hadn’t worn these shoes in years. Show More Summary

‘Accessible’ Cooking for People With Multiple Sclerosis

This past weekend is still a bit of a blur for me. The trip from home to the Dublin airport, plus the flight to London City Airport, plus a short transfer to my hotel near the ExCeL London convention center took most of Friday and left me quite exhausted. And that was just the travel for […]

MS Symptoms: Researchers Look for Life-Changing Breakthroughs

Stopping the effects of even one MS symptom can be a life-changing breakthrough for an individual with MS. I’m encouraged by the many strategies I heard about at ECTRIMS and its companion meeting, Rehabilitation in MS (RIMS), and am hopeful that they can soon be put into action to change the lives of people with MS. Fatigue – Dr. Show More Summary

Research News on Secondary Progressive MS from ECTRIMS

?Greetings from London, England, on the final day of the very busy ECTRIMS meeting. There have been more than 1500 research study results presented over the last few days. If anyone wants to see the depth and breadth of the research, the abstracts (summaries of conference presentations) are freely available here. Show More Summary

Progressive MS at ECTRIMS: New Directions and Challenges

Greetings from the second full day of the ECTRIMS2016 conference in London. Today was packed with research presentations and poster sessions, all about MS. There are many different topics being covered at this meeting, and I’d like to focus this blog on one I’m particularly passionate about, progressive MS. Show More Summary

From ECTRIMS: New Results on Gut Bacteria and MS

The ECTRIMS meeting has been a great place to connect with researchers on what’s truly exciting in MS research. I’ve especially enjoyed hearing about an area of investigation that is moving forward quickly – from initial observations toward treatments or solutions for people with MS. Show More Summary

ECTRIMS 2016: Bone Marrow Transplantation (HSCT)

It’s nighttime here in London, England after the first full day of ECTRIMS – the European Committee for Treatment and Research in MS. This meeting is the world’s largest gathering of MS researchers in the world, with more than 8,000Show More Summary

Predicting the severity of multiple sclerosis

Cells in the immune system of patients with multiple sclerosis behave differently from those of healthy individuals. Researchers have exploited this difference to develop a method that can predict disease activity in multiple sclero...

Researchers lay foundation for innovative treatment of multiple sclerosis

Inhibition of the protein kinase CK2 prevents the development of auto-aggressive T cells, say multiple sclerosis researchers. Multiple sclerosis is the most common chronic inflammatory disease of the central nervous system.

Explaining MS When Others Can’t or Won’t Understand

I miss much from my former career as a chef: I was good at my job, I was respected for my work, and I associated with some of the best people I’ve ever come into contact with. I’ve said before that it’s by remembering the skills from our “former” lives and applying them to multiple […]

Learning to like my cane

Ten years ago, I never would have thought I'd be 27 years old going to Wal-Mart at 11pm to hastily shop for a cane. I didn't even know the proper hand to hold it with. I found a $12 black collapsible cane that wasn't terrible and I was happy to have something for the next morning's commute. Show More Summary

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