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MS International: 9 Years of Blogging, 4 Blogs, 3 Nations

It’s hard for me to believe that our first Life With MS Blog posted nearly nine years ago. A Yank’s Life with MS (for the MS Society of the UK) is more than three years old, and  The Unspeakable Bits from a Life with MS (for the National MS Society) leaves the terrible twos next month. Where [...]

How’s Your MS Today? I’ve Got Nerve Pain and Fatigue

After writing these “How’s your MS today” posts for a good many years (goodness, are we really sneaking up on a nine-year anniversary?), there comes a time each month when I start to wonder.  I take stock of how things are on one particular day, or maybe over a week.  I think about the previous [...]

Now, About This New MS Drug: Lemtrada

It doesn’t seem like that long ago – and in the scheme of pharmaceutical development it really hasn’t been – that we had the ABC drugs for multiple sclerosis treatment and that was it.  With the backdoor approval of the latest MS disease-modifying therapy, Lemtrada (alemtuzumab), people diagnosed with multiple sclerosis now have 11 medication choices. [...]

If We Can Land a Spacecraft on a Comet, Why Can’t We Cure MS?

As our planet turned on its axis, orbited our star, and spun around our galactic center this week, a man-made probe called Philae landed on a comet nearly 311 million miles from my desk.  The moment of awe and wonder was not lost on me, but I will also admit to a moment on the slope [...]

Want to Give Back? Take This New MS Survey

The longer we live with MS, the more we have to give back to our community.  That said, the longer I live with multiple sclerosis, the harder it seems to remember the time before MS.  A new survey on MS posted by Everyday Health made me bounce back and forth from my early teen years [...]

Letter to the MS Editor: What Say Ye?

Well, my week’s holiday is over. I’m still in America after a family wedding and on my way to New York City. I had intended to post all last week, but travel, jet lag, planned and unplanned gatherings — I just had to make the call: no blogs last week. Now it’s off to the city, [...]

MS Symptom Thesaurus: The MS Hug

It’s been a while since we opened the MS Symptom Thesaurus. This concept sprung from our 12 lessons blog in early 2013. In it, you have shared words and descriptions that have helped an uncountable number of people trying to explain their symptoms. Today, we open the pages to “The MS Hug.” Official MS sites [...]

Spring Forward or Fall Back: How’s Your MS Today?

Greetings from my local Internet café. We’re in the midst of another phone/Internet outage in my corner of Ireland. The remnants of hurricane Gonzalo or some other force may have had a hand, but it reminds me to ready for the winter to come. The upcoming change back to standard time has me thinking of the [...]

A Cup of Coffee and 10 Tips for a Successful Nap

Many people – MS and otherwise – find themselves in need of a rest during the day.  My energy usually wanes around 2 p.m.  Sometimes it’s just a dull ache of tiredness and others it’s lay-down-or-fall-down, mind-crushing MS fatigue. Sometimes these kips turn into full-on MS sleeps and I wake hours later in the same [...]

Silly Little MS Mistakes

“If I didn’t laugh, I’d cry… and I’ve cried enough over MS.” I say it quite often.  I often get a little titter at myself when I walk into the wrong room, walk into a wall, or simply turn and fall.  I’ve made a fool of myself in front of the bathroom mirror by using [...]

Comorbidity: Living With MS and…

It’s either the health equivalent of the domino theory or some deeper involvement of our whole immune system makeup, but people living with MS (or any other autoimmune condition) seem to be more likely to acquire a second condition than “healthy” people are to suffer from a first. Even in these pages, we have heard [...]

From the Life With MS Inbox: My Jump for MS

Every once in a while, something comes to my Life With MS inbox that sparks something inside of me and I have to share. We’ve had interesting products that can help people with MS come across our screen, a groundbreaking film about being diagnosed with MS, and books about MS and other disabilities. In August, a message came into our Life With [...]

MS Patients Report Improvements Due to Exercise

A study developed at the Miguel Hernández University of Elche (Spain) has preliminarily concluded that People with Multiple Sclerosis may reduce perceived fatigue and increase mobility through a series of combined strength training and fitness exercises. Show More Summary

Results with Potential Multiple Sclerosis Vaccine Seem Promising

Thanks to new insights related to dendritic cell vaccines, researchers are investigating a potential vaccine for MS treatment and prevention at the Baylor Institute for Immunology Research (BIIR), a division of Baylor Research Institute. If future research supports early findings, the study could mark an important first in that it attacks MS early while preserving […]

It’s Time We Have Access to High-Quality MS Care

In the past five months, I’ve traveled nearly 23,000 miles on buses, trains, taxis, rental cars, and airplanes traveling; spent scores of hours in meetings in person, on the phone, and via the Internet; and been privileged to work with an incredibly talented task force of individuals on the question of access to quality MS [...]

I Want to Feel ‘Regular Tired’ Again

We picked up our pack of Wheaten terriers from the boarding kennel the other day. They’d spent two nights there while Caryn and I took her parents up to the airport at the end of their stay. This boarder absolutely adores our dogs (okay, ALL dogs), so it’s almost a vacation for them. They play [...]

MS Is Becoming a ‘Young Person’s Disease’

In a recent conversation with my dear friend (and fellow MS activist) Emma Rogan, we were discussing some of the employment programs she is heading up for the European Multiple Sclerosis Platform (EMSP). As it often does with good friends, our chat zigged and zagged through a number of rapids, eddies, and deep pools. One [...]

It’s Almost Fall: How’s Your MS Today?

Next week, northern summer will officially become autumn, as winter becomes spring in the south.  I will tell you that I never imagined having a forum whereby we’d be able to chat with friends in both the northern and southern hemispheres on a regular basis. Seasonal changes can raise Cain with the symptoms of multiple [...]

Connection, Disconnection, Reconnection: How Do You Cope?

If you can read this, I’ve figured out how to “reconnect.” After a morning of visiting the shops (and visiting with shopkeepers); an afternoon of important phone calls to sort, arrange, and organize; and, an old fashioned evening connecting with new and old friends gathered in the cozy library of an historic home in our [...]

Ice Bucket Challenge, Part 2: It’s for ALS and MS

You may remember that a couple of weeks ago I took the ALS Ice Bucket Challenge.  It was good fun for a good cause and, as I stated in the blog about it, could help MS research as well. In my video, I challenged the president of MS Ireland, the founders of Shift.MS, and the [...]

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