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Make Some Noise: The Importance of Concerts

Pull up a chair, kiddos, and I’ll tell you a sad story. Because we’re both musicians, my husband and I love going to concerts together. We’re on a budget, so we have to be choosy about who we see and where we sit. However, there is a...Show More Summary

An Ad About Risk Misses The One In Plain Sight

Sometimes you just can’t make this stuff up. At least, that’s the thought I was left with this morning when I happened to see a television advertisement touting a particular company’s abilities to apply predictive analytics to ordinary...Show More Summary

39 Years and Counting — on at Least 39 More Great Ones

Last week, I celebrated by 39th birthday. Yes, 39. That’s one year shy of the big 4-0. The last year of my 30s. If life was a rollercoaster ride, I’m about six clicks from the apex; the big plunge awaits me just on the other side. IShow More Summary

Why the Future of Science Is Crucial to the MS Community

Everything around us, and within us, begins with science. Science is important to the future of humanity’s well-being. Science is what makes the world go around. We all think it’s love, but actually, at its core, love begins with chemistry. Show More Summary

Glove with Sensors Measures Spasticity More Accurately than Physicians

A  multidisciplinary team at the University of California at San Diego has come up with a computerized glove used as a sensor to measure spasticity, or stiffness, in the limbs of patients with multiple sclerosis, cerebral palsy, and stroke. Show More Summary

Importance of Elevators for Universal Housing

You might think that the Fair Housing Act required multifamily buildings to have elevators, but no, it doesn’t. A multifamily dwelling of four units that does not have an elevator is not required to have one. However, the ground floor units must be fully accessible (no steps). Show More Summary

Inspiring Words from Victor Montori, M.D. of the Mayo Clinic

I’ve never met Victor Montori but I’ve long admired him. I’ve read his tweets, become familiar with his minimally disruptive medicine approach and watched him on TED. He is a patient’s doctor. I was so struck by his quote above that I read some time ago I wrote it down. It was probably three or four months ago as I […]

Medicare to Cover Dexcom CGM for People with Type 1 and 2 Diabetes on Insulin

Medicare will now be offering reimbursement for the Dexcom G5 Mobile System for people covered by Medicare who have type 1 or type 2 diabetes and intensively manage their blood sugar levels with insulin. CMS has clarified their criteria for coverage and coding for the Dexcom G5 Mobile system which is the only therapeutic CGM […]

My Fight Song for Multiple Sclerosis

Most of us have heard Rachel Platten’s Fight Song. It became an anthem for many people who struggle with illness and adversity. Fight Song has become one of my favorite odes. As a writer, I love to listen to the words of song lyrics....Show More Summary

MS Awareness Month: Which Ribbon Are We Again?

March is Multiple Sclerosis Awareness Month, ending with World MS Day on March 31. That means we need to make the most of these four weeks to raise some money for research, and raise awareness about the disease and the 2.5 million people in the world currently living with it. Show More Summary

Fighting the Chocolate and Diabetes Demons

This post is dedicated to my friend Carol. I met Carol through my blog and we periodically email each other talking about type 1 diabetes, Medicare, and stuff like that. She doesn’t live near me and I don’t know if we will ever meet in person. But we share the journey, the joy, and the […]

MS Focus Interview on ‘Mind & Mobility’ Festival, Set for March 12, and Benefits of Yoga

The Multiple Sclerosis Foundation (or MS Focus)  is holding its first Mind & Mobility festival this month, an event that includes yoga and meditation, talks, information booths on health and support services, and adaptive sessions for those disabled by multiple sclerosis (MS). Show More Summary

MS Patient’s Pick of the Week’s News: #MySupportHero, Awareness Video, Mind and Mobility, Seizures, Acthar Gel

Here’s my Pick of the Week’s News, as published in Multiple Sclerosis News Today. MS Organizations Join #MySupportHero Initiative to Help Patients Salute Those Who Care Oh, I can see me fitting in well here. To see what I mean, justShow More Summary

MS Awareness Month: How You Can Help

March is MS Awareness Month, and while we should be raising awareness all year round, it’s a good reminder to get more involved in the community and help out in whatever ways we can. Every little bit helps. Awareness results in moreShow More Summary

MS Focus Interview on ‘Mind & Mobility’ Festival Set for March 12, and Benefits of Yoga

The Multiple Sclerosis Foundation (or MS Focus)  is holding its first Mind & Mobility festival this month, an event that includes yoga and meditation, talks, information booths on health and support services, and adaptive sessions for those disabled by multiple sclerosis (MS). Show More Summary

MSAA Releases Promotional Video to Mark Multiple Sclerosis Awareness Month

On a Monday in July, the Multiple Sclerosis Association of America (MSAA) gave Kathy, who loves to hike in the woods, a cooling vest that reduces heat stress — a common issue for people with multiple sclerosis (MS). On a Wednesday in October, the nonprofit funded an MRI for Sarah, another MS patient. Show More Summary

Tips for MS Travelers Include Diligent Packing Prep and Carrying a Bright Suitcase

My coming trip to Spain has me in research mode. After making a list of my travel questions last week, I decided to obtain the answers to just a few each week. Baby steps for this novice planner. Before I decide whether to take my AFO,...Show More Summary

Getting Acquainted with My New Dexcom CGM

Now that I’m officially several weeks into my life on Dexcom, I just wanted to scribble down some notes for the purpose of keeping a record of how it’s been going so far. This is mostly stream of consciousness, but as usual, my stream of consciousness still contains several words. Hopefully, they are ones you’ll […]

Preparing for #ACTRIMS2017 – Top 3 Topics From ACTRIMS 2016

The second annual America’s Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS), a forum for clinicians, researchers and other MS specialists to network and discuss the latest advances in MS research and treatment is set for February 23 to 25, 2017. Show More Summary

Resilience: ‘T’ain’t What You Do (It’s the Way That You Do It)’

Resilience can mean the ability of a person to solve problems and bounce back from difficult situations. That, at least, is the definition a group of researchers from the University of Washington gave to resilience when they surveyed a cadre of 1,574 people with a range of chronic conditions that included multiple sclerosis, muscular dystrophy, […]

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