Post Profile






Open Data and CFS/ME - A PACE Odyssey Part 1

Writing in STAT last week, Julie Rehmeyer discussed the release of raw data from the PACE study, a clinical trial which has long been controversial amongst the very population it studied: people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Rehmeyer, a CFS/ME patient herself, reports: Under court order, the [PACE] study’s authors for the first time released their raw data earlier this month.
read more

share

Related Posts


Chronic fatigue syndrome not linked to suspect viruses; Study puts to rest notion that XMRV or pMLV cause the mysterious ailment

Academics / General Science : ScienceDaily: Science Society

The causes of chronic fatigue syndrome (CFS) have long eluded scientists. Since investigations by several laboratories have been unable to detect XMRV or pMLV in CFS patients, researchers collaborated on a study to resolve this issu...

1 in 50 16-year-olds affected by chronic fatigue syndrome

Academics / General Science : Science Codex

In what is believed to be the biggest study of chronic fatigue syndrome (CFS) -- also known as myalgic encephalomyelitis (ME) -- in children to date, researchers at the University of Bristol (UK), have found that almost 2 per cent o...

Uninterpretable: Fatal flaws in PACE Chronic Fatigue Syndrome follow-up study

Academics / Neuroscience : PLOS: Mind the Brain

Earlier decisions by the investigator group precludes valid long-term follow-up evaluation of CBT for chronic fatigue syndrome (CFS). At the outset, let me say that I’m skeptical whether we can hold the PACE investigators responsibl...

Multi-Site Blinded Study Puts To Rest The Notion That Chronic Fatigue Syndrome Is Linked To Suspect Viruses

Health : Medical News Today

The causes of chronic fatigue syndrome (CFS) have long eluded scientists. In 2009, a paper in the journal Science linked the syndrome - sometimes called myalgic encephalomyelitis (ME) - to infection with a mouse retrovirus called XM...

More on the PACE (chronic disease syndrome study) scandal

Academics / Mathematics : Statistical Modeling, Causal Inference, and Social Science

Last week we reported on the push to get the data released from that controversial PACE study on chronic disease syndrome. Julie Rehmeyer points to a news article with background on the story: Patients rapidly discovered serious sci...

Comments


Copyright © 2016 Regator, LLC