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The Next Charlie Gard? Baby Russell Has a Similar Condition and His Parents are Fighting for His Life

In late July, Charlie Gard, the baby stricken with the rare and typically fatal genetic disorder known as Mitochondrial DNA Depletion Syndrome, died. Charlie was at the center of a legal battle between his parents and the British healthcare system over who ultimately had the authority to decide if, and when, to remove the infant’s […]

Planning for the end of life: What baby Charlie can teach us

Charlie Gard was a one-year-old boy who had a rare genetic disease leaving him blind, comatose, and unable to breathe on his own. This metabolic disorder can be fatal and has no known cure. Charlie’s parents wanted him treated with experimental drugs in the hope that a miracle would happen. As reported in the press, the British […]

Charlie Gard parents set up foundation with £1.3m of donations

Charlie Gard Foundation, named for boy who died after long legal battle, will aim to help other children with rare illnesses The parents of Charlie Gard, the 11-month-old boy who died last month after a long legal battle, have said they...Show More Summary

GoFundMe donates $13K to Charlie Gard Foundation, helping sick kids

GoFundMe.com was 'so touched by our cause' that the company itself decided to donate.

Charlie Gard's Mother Describes Heartbreaking Ordeal

Charlie Gard's mother shares details of her baby's life and the fight for an experimental treatment.

Charlie Gard’s Mother Recalls When the Doctor Said “It Would be Kinder” to Kill Him

Before she gave birth to her son, Charlie Gard, Connie Yates spent most of her time caring for people with severe disabilities. In a column for Now to Love, Yates said she saw at work how doctors sometimes were wrong and gave up on patients too soon. It’s one of the reasons why she and […]

Parents of Brain Damaged Son Fear Hospital Will Remove His Life Support Like Charlie Gard

Another British family is fighting for the life of their severely ill son after they say King’s College Hospital failed to act quickly enough to provide care for him. Baby Isaiah Haastrup suffered brain damage while his mother experienced labor complications in February at the British hospital, according to Southwark News. His parents, Lanre Haastrup […]

After Denying Charlie Gard, UK Allows Another Baby to Fly to U.S. for Critically-Needed Surgery

The British National Health Service will pay to have a seriously ill baby flown to the United States for medical treatment, not long after it denied the same service to Charlie Gard. The Telegraph reports 7-month-old infant Oliver Cameron suffers from a rare heart tumor called a cardiac fibroma. Medical experts in the U.S. have […]

Staffer at Hospital That Denied Charlie Gard Transfer and Experimental Treatment Trashes His Supporters

A health care worker who helped to treat Charlie Gard defended the hospital’s decisions about his life and death in a column for the Guardian this weekend. The medical worker, whose name remains anonymous, claimed the British infant suffered by being kept alive during a political soap opera about his treatment. The staffer slammed supporters […]

Charlie Gard’s Parents on His Final Moments: “He Opened His Eyes and Looked at Us and Then Closed Them”

For the first time, Charlie Gard’s parents shared details this week about their last moments with their son before he died. The British infant died on July 28 after his life support was removed, following a lengthy court battle between his parents and hospital. He would have turned 1 year old on Aug. 4. His […]

For Parents of Children Like Charlie Gard, Learning to ‘Redefine Hope’

2 weeks agoHealth : Well

For parents of incurably ill children, the death of a British baby evoked memories of their own search for treatment and answers where often few existed.

Difficult decisions in the Charlie Gard case | Letters

Healthcare professionals are often under enormous pressure to hold out false hope in the face of unpalatable facts, writes Allan Dodds A big thank you to the anonymous author of the article on the sad fate of Charlie Gard (5 August)....Show More Summary

Charlie Gard’s Parents Describe His Final Moments: ‘Charlie Opened His Eyes And Looked At Us One Last Time’

Charlie Gard’s parents have opened up about the infant’s tragic final moments after a breathing tube was removed, saying that their precious boy was a “fighter and warrior” to the end. The infant gained international attention through his parents’ battle to keep him alive. Show More Summary

Charlie Gard's life became 'soap opera': clinician

A clinician who treated Charlie Gard, the terminally-ill British baby who died last month, said Saturday his short life became a soap opera fuelled by President Donald Trump and the pope. Gard's plight drew world attention and sparked...Show More Summary

Like Charlie Gard, A Hospital Gave Up on Baby Dezmen and Said He Was Not Worth Saving

An American family is refusing to give up on their desperately ill infant son, much like Charlie Gard’s parents did. Dezmen Licea was born on June 26 in California, and had heart surgery on the first day of his birth, his father, Luis Licea, said. The infant was diagnosed with a rare congenital heart defect […]

How Much Did It Cost the Hospital to Kill Charlie Gard?

Remember the good old days when the medical community used their time and money to wipe out disease not the patient? The strange and tragic case of baby Charlie Gard being sued by his own doctors so they could hold him hostage and end his life at the (not so) Great Ormond Street Hospital sickens […]

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